First time sucks.

Cody had to stay home from school today because he was low. He was low all day yesterday after spending the night at his cousin's house. He laid in bed all day and was completely in crisis. He didn't want to do anything but lay under the covers and barely watch TV. Prior to staying at his cousin's house he was already doubled because he was just on Christmas break and after long breaks from school he needs more medicine to recover from the abnormal schedule.

We bumped his meds yesterday, today and then tripled his meds tonight. Nothing has seemed to help so I called his doctor. The last two times this has happened our doctor would have told us do a triple dose Cody for 2 or 3 days. During those crises none of that helped, it took a visit to the ER for an IV of his medicine to get him through these type of low crisis times (essentially giving him his emergency shot only via IV instead) .

For the first time since diagnosis our doctor told us to give him his emergency shot today instead of waiting 2 or 3 days for the oral medicine to kick in. So tonight I gave him his emergency shot for the first time. Of course he hated it and so did I. The needle they have us use is too big in my opinion (too thick). We need a different gauge. It is a 21 gauge and I am thinking he needs a 25 gauge. Anyway it hurt him bad and I could tell it did when I stuck him with it. I'm no rookie at this either I have given myself a minimum of 1 to 2 shots a week for the last 4 or 5 years. It hurt because the needle is too think.

We go for our quarterly visit this week so I'll be asking the doctor about that change needle size, but the shot did help. He is starting to bounce back. He is not completely recovered but in the last hour or so since his shot he is much better than he has been in the last two days of giving him double/triple his medicine. I don't know what it is about him and his oral medicine when he is low; the liquid works almost instantly. Obviously its about absorption but still taking triple should bring him back to normal and it doesn't.

We have noticed that with a shot he has not recovered quite as quickly as an IV with his medicine, but I believe that is the difference between straight in his blood versus in his muscle then adsorbed in to his blood.

I am glad the doctor let us do the shot sooner than normal as he gets to get back to life sooner. Time will tell once tomorrow morning gets here and that shot has had its time to get completely absorbed in his body. But it really sucks that Christmas break, two days of school, and a night at his cousins house has caused this crisis.