Sunday, August 7, 2016

Life is wonderful!

It’s been a while since I have posted and frankly that is a good thing.  We haven’t had many issues since baseball ended for us earlier this summer.  Life has been nice for Cody as he has relaxed and played video games the majority of the remainder of this summer.  Monday and Tuesday this week are big days for Cody.  He is doing something called Web Cares at his middle school.  He’s in 8th grade now so he, as the “big man” on campus now, has volunteered to mentor and help the new incoming 7th graders.  The 7th graders have a transition day 2 days before school starts so kids like Cody volunteer to help these new kids find their lockers and classrooms.  He has such a big heart.  He is always wanting to help people.  So the next two days he has to go to school for 5 hours each day to “train” on how to help the new 7th graders on transition day.  We will see how he does since he is not on a normal schedule he is still in summer mode.  He is still on the staying up late and getting up late so the next week may be interesting.   We are going to work to get him on a school schedule this week or he is not going to even make it through the first week of school.

You may or may not be aware the last month or so has been big for us.  Cody was recently accepted and awarded a “Dream” from the Kansas City Chapter of the Dream Factory.   If you are not familiar with the what the Dream Factory is all about you should check them out they are an amazing organization.  Their mission is "To grant dreams to critically and chronically ill children from the ages of 3 through 18."  Cody was granted a dream to go to Disney World this October.  It was an amazing and humbling experience being presented with this dream for him.  At the same time, we were presented the dream we found out that there was one more surprise and honor.  We found out his story was shared with a local foundation that works with the Dream Factory here in KC called The Boulevard of Dreams.  The Boulevard of Dreams is a local foundation started by a family of a dream factory family whose son lost his battle with his disease.  His amazing family has taken his beautiful smile and beautiful memories to help many children in our area with lots of different medical conditions continue to smile alongside the Dream Factory. We are overwhelmed with gratitude for the smile they have put on our son’s face and the memories made and yet to come by granting his Disney Dream.

This past Friday night we attended a Gala for the Boulevard of Dreams which was an impressive event that’s sole purpose was to raise money for the dream factory.  It was an astounding and humbling even as being present.  It was fun to see all that the community does and overwhelming as Cody was the guest of honor.  The event started at about 5 PM and they had food and drinks and all kinds of events going on.   We were told to get there about 8 PM as there is just a lot mingling and the real introductions and presentation of additional dreams didn’t start until about 8:30 PM.   We go there and got settled in about that time.  Cody was a mess he was so nervous.  He knew this was about him and others and he doesn’t handle this level of attention very well.  We of course dosed him higher for the evening to handle the stress of the event.

Len Jennings from the local ABC affiliate here in KC was the MC.  He was super nice.  He came over and talked to us and told us what he was going to do and how to handle it all.  They wanted us to get up on stage with everyone but Cody was very scared of doing that so Len graciously said he had a wireless microphone and told us he would come to our table to talk to us.   

About 8:45  PM they started introducing kids.  These kids were there for the dream factory and didn’t know why.  It was so much fun to see them presented with dreams.  There was about 6 or 7 kids ranging from 6 to 17 years old.  One child, 6 years old, has spina bifida and her dream was to meet Princess Elsa.  So they presented her with an adorable Elsa dress and some other items to go along with her trip to Disney world.  One 17-year-old former dream factory child received a $5000 scholarship for her college career.  There were many dreams handed out on that night and every child had something different they wanted as their dream and each child’s life was affected by a chronic illness that made life difficult but through it all they and their families endure it all.  It is amazing the love that these people running the organization have for complete strangers like us.  Treating us as if we were their family too.  I wish I could explain the feeling of it all.

They presented all the surprise dreams and paused for a bit to do the auction of 6 special items.  An AMC package to see as many movies as you want to see for 2 for a year, a royals dugout suite package for a couple games, some trips/cruises to Disney, and a huge Caribbean all expenses paid trip.  All of them raised thousands of dollars for the organization.  The final item being the most adorable 12-week old full breed golden Labrador retriever.   He was so cute.  The two women who raised this puppy to this point were sad and happy at the same time.  The dog they had raised for the last 6 or 7 weeks was no longer theirs but they knew the dog was going to a great family as the buyer turned out to be their friend.  I think their friend fell in love with the dog while they raised it so at least the two girls would get to see their dog a lot.  The auction was a whirlwind.  I hadn’t been through something like that in a while and it was sheer craziness and fun to see the outpouring of support for the dream factory and the boulevard for dreams.

Noah TysonAfter they auction the Noah Tyson family got up and started telling Noah’s story and I couldn’t help but cry.  It is an amazing and sad story of a little boy who lost his fight.  He got to go to Disney world for his dream and unfortunately lost his battle with his disease a few months later.  This wonderful family turned his tragedy into an amazing event and organization to help other kids like his son deal with life-threatening and chronic diseases and disorders.  They give families a little piece of happy in what can frequently be a daily battle in life.  


CodyThey showed a nice presentation about Cody and his disease and what it means to his life.  Len Jennings then walked over and talked to Cody and asked a few questions.  He asked him what he likes to do.  He of course said he loves to play baseball, loves to watch Harry Potter movies, and of course loves Disney World.  It was a neat few minutes while the whole room cheered for him and of course Cody hated every minute of it.  He told me later his heart as racing and he was a nervous wreck.  I could see it in his face he was scared to death but he handled it well.

The hard part was over the rest of the event went on and they raised a lot of money.  It was great to see the community support as people pledged thousands of dollars in donations at the end of it all.  We headed over to again thank the Tyson family and they were wonderful people.  The love they showed for Cody and for us.  Telling us if we needed anything at all just to call them and they would help in any way possible.  It was amazing that these complete strangers have offered so much to us.  Mr. Tyson is a nurse so understood exactly what we were going through and understood the battle that he faces everyday.  I cannot express enough how much these people love what they do.  You can see it in their faces and in their actions when they talk to everyone.

The event was drawing to a close so we worked our way outside.  We waited in line to get our car from the valet.  We were talking about how Maddie could get a sticker for her future car while we were at Disney this year since she’ll own a car now.  There was a man in front of us in line and kept smiling as we were talking about our Disney trip.  He turned around to say “oh hey are you the baseball boy from tonight?”  I told him yes this is Cody.  He said “I used to play for the Seattle Mariners, but now I play for the T-Bones.”   Cody of course thought it was amazing just to meet him, but the guy took it one further.  He said “hey I know the Tyson’s I’ll get your info and send you some T-bones tickets, I’d love to have you out to a game.”  Again we were floored.  This guy didn’t need to say or do anything and he went out of his way to talk to Cody and invite him to a T-Bones game.   I don’t know if it will really happen or not but again we were just humbled by the love and affection complete strangers feel for someone like our son.


We have been so blessed through all of this.  It been overwhelming at times the number of people who have taken the time to see what they can do to help us or offer support.  These people don’t know anything about what Cody goes through and in some cases these people don't even know what the disease even means but they care enough to try and help in some way just because they want to help someone like Cody.