It’s been a while since I have posted. So what can we take from that statement? Life has been getting easier, slower, more
managed, or all the above? Well the
answer, a little of all of them. School
got out a few weeks ago so Cody’s days are much easier. No tests, no homework, no PE, and no stress
from teachers unhappy with their classes.
The daily grind is hard on all of us but especially hard on those with
AI.
Our biggest worry lately has been whether or not Cody will
be able to play baseball. He’s been
having issues getting through practices let alone a tournament weekend where he
will be playing 3 or more games. Near
the end of May Cody had his first tournament.
We had a plan in place to get him dosed correctly and hopefully this
would get him through the weekend. Our tournament
schedule came out and we had two games back to back Saturday afternoon. We were really worried. He hadn’t had to go through 4+ hours of
baseball all at once since being diagnosed but all we can do is try. We dosed him according to plan and he played
his two games. The games didn’t turn out
good but Cody was fine once they ended.
The real test was the evening and the next day.
Sunday came and we continued with the dosing plan. Since we lost our 2 pool games we had to play
the 8 am Sunday morning game. It was
just over 12 hours since we had finished playing the previous day. He was slow to get out of bed, but frankly so
was I. He told us he was doing well and
we went off to the game. He again played
the 2-hour game and was doing just fine.
He was still tired but again I think at this point he was tired from
having to get up at 6 am that morning.
He had to have breakfast and get ready for his game. He wasn’t really showing any signs of being
low. The rest of the day went really
well. He was even a little energetic and
threw his bouncy ball against the wall for several hours on that day.
Why had the plan worked this time when it hadn’t been
working for practices? He played hours
of baseball and never went in to crisis mode.
We think there are multiple factors as to why this is happening this
way. Number 1 being he is not in school
he is not having to get up every day at 6 am to get ready for his day and have
a full day at school. Then on say
Tuesday night spend another hour and a half practicing. This made for a very long day. The second factor being the fact that in a
game situation you are not truly playing every minute of every game. There are lulls in playing and it is not a
constant go go go. His practices are in
constant motion so we think he gets more physical in practice then he does in a
game.
Overall this dosing plan for tournaments has been
working. This weekend we had another
tournament and he has handled it fairly well.
Though today he is a little less energetic than the last
tournament. Today he is a bit low, but I
think it is because today’s game was a bit harder than the Sunday game last
tournament.
As a side note, I wish he had the body size and the
energy to match his drive, passion, and love for baseball. He tries harder than most kids we face and
play with, but his poor body keeps him from being as good as the other kids on
the field. He’s facing pitchers 6 to 8
inches taller than he is and he gives it his all every time without even
thinking twice about it. He makes plays
in the field sometimes that I am not sure others would make if they too were
his size and had to deal with what he has to deal with on a daily basis. Am I saying he is the best player on the
team. No, not by a long stretch. What I am saying is given all that he is
fighting in his life with AI and his growth issues he a pretty damn good
player. I am saddened by how much his
body keeps him from excelling at a game he loves. But I am also the proudest father in the
world at how he tries his hardest every second he is on the field. He never gives up and he never get down. I see kids throw a fit because they get
struck out or miss a fly ball or a ground ball, but not him. He always runs off the field with a smile on
his face no matter the situation. He
knows he did the best he can do and maybe next time is his time. I am just hoping that over time his body will
catch up to some of the other kids. I would love to see what he could do if he
wasn’t fighting all these issues fighting against him. I just hope we don’t run out of baseball years
before his body catches up with everyone else.
This is why I work so hard to figure out how to keep him playing because
no matter what he loves playing this game.
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