This past weekend we “tested” the theory that we have been
working through with the doctor. It’s a
theory because every child with AI is different and we are just trying to figure our
child out. We dose him higher when there are going to be
long periods of stress or physical activity.
For this weekend he had a scrimmage with his baseball team. It was close to a game and we “scrimmaged”
for almost 3 hours. He did very well on
his new dosing scheme. He was energetic
throughout and came home almost like a normal kid.
The good news is we learned to control one game on one
day. Now we hope to be able to extrapolate
that out to a plan on how to deal with daily issues. We still have to figure out unknown days that
happen on the fly, but we may be closer to figuring out how to deal with those
things for which we can plan.Next week he has state mandated “MAP” testing at school. This is going to be a test for him, no pun intended. These types of high pressure tests can be stressful on any normal child let alone my son who has no control over his stress at all. We will be adjusting him appropriately for these tests, and I hope it works.
It’s not an answer to all our questions, but rather a
possible answer to a question that has no right answer. At least we had a good day.
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