Tuesday, April 19, 2016

Some days are good.

Sunday was one of those good days.  We have been working closely to the doctor to figure out how to properly dose Cody for his days of heavy activity or heavy stress.  As I have discussed stress can be good and bad stress.  Stress as adults is easy to see.  Too many medical bills, tough day with work or a coworker with a bad attitude, a broken down car, or a child who is sick.  As a child stress is harder to find.   What child has over extend extended themselves on bills or a broken down car?  None of them do so how do we manage stress.  We have to look at what might or might not be too exciting or stressful in his life. 

This past weekend we “tested” the theory that we have been working through with the doctor.  It’s a theory because every child with AI is different and we are just trying to figure our child out.   We dose him higher when there are going to be long periods of stress or physical activity.  For this weekend he had a scrimmage with his baseball team.  It was close to a game and we “scrimmaged” for almost 3 hours.  He did very well on his new dosing scheme.  He was energetic throughout and came home almost like a normal kid. 
The good news is we learned to control one game on one day.  Now we hope to be able to extrapolate that out to a plan on how to deal with daily issues.  We still have to figure out unknown days that happen on the fly, but we may be closer to figuring out how to deal with those things for which we can plan.

Next week he has state mandated “MAP” testing at school.  This is going to be a test for him, no pun intended.   These types of high pressure tests can be stressful on any normal child let alone my son who has no control over his stress at all.  We will be adjusting him appropriately for these tests, and I hope it works.

It’s not an answer to all our questions, but rather a possible answer to a question that has no right answer.  At least we had a good day.

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